| Read stories results: Found 180 matches out of 180 records.
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| ID: | 100189
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Time/Date: | 09:39:52 AM PST/ 02-17-2018 |
| Name: | Janine cuesta |
| Email Address: | cuestajanine@gmail.com |
| Story: | I was a victim of steven johnson way back 2005. I was working as a cashier in one of beauty products in our country and furst i felt the symptons of having flu and fever. Until such time its a worse thing happen to my life for taking some medicine " esboxyl". Then it cause my body blisterring and it shows like a 4th degree burn. Ive got problem for my eyes in which its getting red and still have my scars on my face in which i loss my confidence in which people critisize my face. |
| Add Email to Story: | Yes |
| ID: | 100189
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Time/Date: | 09:39:46 AM PST/ 02-17-2018 |
| Name: | Janine cuesta |
| Email Address: | cuestajanine@gmail.com |
| Story: | I was a victim of steven johnson way back 2005. I was working as a cashier in one of beauty products in our country and furst i felt the symptons of having flu and fever. Until such time its a worse thing happen to my life for taking some medicine " esboxyl". Then it cause my body blisterring and it shows like a 4th degree burn. Ive got problem for my eyes in which its getting red and still have my scars on my face in which i loss my confidence in which people critisize my face. |
| Add Email to Story: | Yes |
| ID: | 100189
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Time/Date: | 09:39:43 AM PST/ 02-17-2018 |
| Name: | Janine cuesta |
| Email Address: | cuestajanine@gmail.com |
| Story: | I was a victim of steven johnson way back 2005. I was working as a cashier in one of beauty products in our country and furst i felt the symptons of having flu and fever. Until such time its a worse thing happen to my life for taking some medicine " esboxyl". Then it cause my body blisterring and it shows like a 4th degree burn. Ive got problem for my eyes in which its getting red and still have my scars on my face in which i loss my confidence in which people critisize my face. |
| Add Email to Story: | Yes |
| ID: | 100189
|
Time/Date: | 09:39:36 AM PST/ 02-17-2018 |
| Name: | Janine cuesta |
| Email Address: | cuestajanine@gmail.com |
| Story: | I was a victim of steven johnson way back 2005. I was working as a cashier in one of beauty products in our country and furst i felt the symptons of having flu and fever. Until such time its a worse thing happen to my life for taking some medicine " esboxyl". Then it cause my body blisterring and it shows like a 4th degree burn. Ive got problem for my eyes in which its getting red and still have my scars on my face in which i loss my confidence in which people critisize my face. |
| Add Email to Story: | Yes |
| ID: | 100188
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Time/Date: | 08:19:45 AM PST/ 02-10-2016 |
| Name: | Anonymous |
| Email Address: | EmailAddress@notprovided.com |
| Story: | I am choosing to remain anonymous because I am really going to put my heart and soul to this and if the Lord leads I will reveal myself. I got SJS a few years ago. I suffered from PTSd and depression since I was a kid. Please do not take what I say as something to be ignored because of my mental illness. Many times we are brushed off because we are a little bit more broken than others. I have been battling mental illness my whole life and I was always pushed meds that would break my mind even more. Getting SJS was a wake up call for me to stop relying on chemicals that can kill me and find alternative solutions. Also because I was seeking to sue the company they used my mental illness to completely ignore me and I have to pay everything out of pocket which is not fair. The doctor who prescribed the meds was so busy trying to cover tracks instead of really caring about me or how to help me. I am not bashing the medical community but a lot of them are just trained to push deadly drugs because that's the way the system works. The ointments in my eyes were making things worse and the chemicals I put on my skin were making my skin worse and making it even more itchy. I was getting SJS again when I was put back on anti depressants and I cried out to God and I searched and I found an alternative Christian Doctor. He did not tell me to take anything or buy anything from him but told me what he would do. I have viral conjunctivitis in my eyes so the steroid drops would make things very painful. After doing a lot of reaserch and personally trying this myself I am seeing results in a short time. This protocol along with praying everyday to my Lord and savior had yeildes results. Colloidal silver mild silver protein 10ppm really clears my eyes. And as well as using supplements from standard process
Dermatrophin PMG® by Standard Process 6 a day split up dosage with food
Antronex® by Standard Process 6 a day split up dosage with food
I would also heavily recommend a full body cleanse with a emphasis on liver and gallbladder
Livaplex® 6 a day for a month
Choline 6 a day for a month
SP Cleanse® 10 a day for a month
These detox supplments are from Standard Process. able to get them on Amazon but also a local chiropractor not telling people what to do but it's very costly to do medical procedures that can make you feel worse cause I've been there and I've been dealing medications slowing killing me for years if you work with your doctor or find a doctor that would help you heal then the doctor can give you a code to get these vitamins they sell it on amazon but it's double the price of what you would pay. So again this protocol would have to be done for at least two months to yeildes result and it has to be done slowly to reach up that dose because detoxes shock the body of done to fast. Not a docto just a survivor and I am winning the battle by the power of my Lord Jesus and these vitamins that have been helping me. I'm not out seeking profit so I can't recomend who to contact to get this. Also you would have to do this at your own discressuon so can't gaurentee what I will gaurentee is that the medical industry wants to keep you sick and dying not all but a lot of them do and it's cruel to tear humanity as sheep. I will pray for everyone's healing God Bless.
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| Add Email to Story: | No |
| ID: | 100187
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Time/Date: | 06:40:21 AM PDT/ 10-25-2015 |
| Name: | Sara |
| Email Address: | sjwalker1974@gmail.com |
| Story: | This is a story about my Mother. This nightmare for her began over 15 yrs ago when first she had pneumonia followed by ear infections in both ears. She was treated with antibiotics for over 2 years because of these infections. One day she shows me blisters on her back. Within a few days she was red from head to toe. Similar to maybe a 2nd degree sunburn. The nightmare spiraling from there. The burning and pain she had was indescribable. For years we toted her from doctor to doctor. No one Knew what she had. Her doctor finally gave her Xanax to calm the nerves. She still suffers today but not as severly. She now has neuropathy in her feet and legs that I beleive is also related.
Anyone know of what treatment could be available at such a late time?
The burning feeling still persist. The blistering and peeling stopped years ago.
This is such a long story. I couldn't possibly go into all of it here. I would take her anywhere I can if it meant she could be treated. |
| Add Email to Story: | Yes |
| ID: | 100187
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Time/Date: | 06:40:17 AM PDT/ 10-25-2015 |
| Name: | Sara |
| Email Address: | sjwalker1974@gmail.com |
| Story: | This is a story about my Mother. This nightmare for her began over 15 yrs ago when first she had pneumonia followed by ear infections in both ears. She was treated with antibiotics for over 2 years because of these infections. One day she shows me blisters on her back. Within a few days she was red from head to toe. Similar to maybe a 2nd degree sunburn. The nightmare spiraling from there. The burning and pain she had was indescribable. For years we toted her from doctor to doctor. No one Knew what she had. Her doctor finally gave her Xanax to calm the nerves. She still suffers today but not as severly. She now has neuropathy in her feet and legs that I beleive is also related.
Anyone know of what treatment could be available at such a late time?
The burning feeling still persist. The blistering and peeling stopped years ago.
This is such a long story. I couldn't possibly go into all of it here. I would take her anywhere I can if it meant she could be treated. |
| Add Email to Story: | Yes |
| ID: | 100186
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Time/Date: | 12:17:50 PM PDT/ 04-15-2015 |
| Name: | Fiona |
| Email Address: | fomahony91@gmail.com |
| Story: | Hi, I'm a 23 year old girl/woman from Ireland and it's April 2015. Recently I have had a lot of trouble with medication and I'm wondering if I have the initial symptoms of sjs. I feel it's been caused by paracetamol (I think it's called Tylenol in the US). Around a month ago I had tonsillitis which I took penicillin for. I was allergic to the antibiotic and broke out in hives. I switched to another antibiotic which was fine. I then took some paracetamol for the pain in my throat but it didn't relieve the pain and I got another different sore throat and sore mouth, I also had tingling in my genital area. This lasted a few days. I didn't realise it was caused by the paracetamol and took some again yesterday because I had a severe headache from a cold I have at the moment. Two hours after I took the paracetamol my eyes were burning. This morning I woke up with the same sore throat and mouth I had before and the strange tingling in my genitals. I am now worried that it will progress. I haven't taken any more paracetamol since yesterday so I'm hoping it won't get worse. I would like to thank everyone on this website for the stories. You are all so very brave and I would never have heard about the syndrome if I hadnt come across this website by accident! Is there anyone out there who have also had these symptoms? I believe I am suffering with sjs albeit a very mild form as there are no blisters so far. I am sincerely hoping that it stays that way! Anyone can feel free to contact me! Thank you again for this wonderful website. You are all amazing people! :) |
| Add Email to Story: | Yes |
| ID: | 100185
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Time/Date: | 11:13:46 PM PST/ 02-20-2015 |
| Name: | Mattox |
| Email Address: | EmailAddress@notprovided.com |
| Story: | In 2013 I was diagnosed with sjs from taking Bactrim . I was 25 years old and never had any health problems or have I ever been in the hospital besides giving birth to my children. I was taking Bactrim for mrsa which was not diagnosed by a blood test or any other form of test but by the symptoms I told the doctor. I had 3 staph infection in a 3 month period. I was 3 pills away from finishing when I woke up one day with blistering of my lips. I did have all the other symptoms. First I had a severe headache and later my ears begin to hurt to irritation to the sun. It felt like there was something in my eyes. I eventually woke up to the blistering of my lips which led me to the hospital. I was at the hospital for 2 days when they told me that I had to be moved to a burn unit where I can receive better care. I was in so much pain that I felt like I was gonna die. I was in the ICU burn unit for 1 1/2 weeks when I was finally discharged. The ONLY way I got through this was through God! I had many prayer go out for me. I had a severe case that I was later diagnosed with TEN. I'm currently 2 years in recovery and I still have scares on my body. God has blessed me with another day and another child. I do not have any after affect besides my scares and the occasional irritation to my eyes when I first walk outside. I'm truly blessed to be here. I would not be here if it wasn't for the prayers I received. Jesus is my lord and savior. At first I felt like I would never live a normal life, but I was wrong. If I could give my advice on how to get through this is to know with God by your side you can achieve victory to anything just believe that he loves us and we all have trials and tribulations that we must over come to really understand life and how valuable it is to love one another and to try to make each day better for ourselves and other by spreading the word of God for he is great! I will continue to pray for everyone that has and will go through this especially the children. |
| Add Email to Story: | No |
| ID: | 100184
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Time/Date: | 12:20:08 PM PDT/ 10-28-2013 |
| Name: | Kathleen Santiago |
| Email Address: | kathleensantiago410@gmail.com |
| Story: | Hello my name is Kathleen Santiago. I am 14 years old and I am a survivor of SJS. Stevens-Johnson Syndrome is a potentially deadly skin disease that usually results from a drug reaction. Another form of the disease is called Toxic Epidermal Necrolysis, and again this usually results from a drug-related reaction. Both forms of the disease can be deadly as well as very painful and distressing. In most cases, these disorders are caused by a reaction to a drug, and one drug that has come under fire lately is the cox-2 inhibitor Bextra, which is already linked to these disorders.
It all started on December 30th, 2012. I had very bad cramps so I went to the corner store and I bought a pack of Advil. I took the Advil and went to bed. The next morning I woke up with a rash which looked like the Chicken-pox. I told my mom and she said it would go away. That day I did what I had planed and didn't get any worse. On January 1st, 2013 I went to New Years party at a family members house, and my rash was fading away.
I woke up the next day with blisters all over my legs, arms, souls of my feet. I was so scared. My mom took me to the doctor and she treated me for what she thought was Scabies. I was then treated with Keflex (cephalexin) and a topical cream. The doctor told me I would get worse before I got better.
As the days past, I got worse. So on January 9th, 2013. I was taken to Saint Christopher's Hospital for Children where i was told "Nothing is wrong with her, she just has a rash." and was sent home. My mom refused to take me home and the police were called. My mom took me home and then the police showed up once again at my house because the hospital reported me as a missing child after we where asked to leave.
It was now the 10th of January and I was suffering for SJS not even knowing it. When my rash first came I did not have a fever or was sick or anything like that. It was just a rash for as far as I knew. Until January 17th I got very sick and was taken back to the doctors whom sent me straight the the hospital. By this time i was barley conscious, I was unable to walk due to the soles of my feet blistered. When I was put back into my mom's car I seen the blistering appear on my lips and down my throat. The worse as came. I was not able to talk by the time we arrived at the hospital. I was wheeled in by my girlfriend and signed in by mom. I was then took to the ICU/ Burn Unit. I was in the hospital for 6 week. I had several plastic surgeons, and infectious diseases specialist take care of me. While my family watched me slowly suffer from the still unknown rash. On January 15th I was diagnosed with SJS and I had no idea what it was. I was told i was not going to make it. The only thing that was left for me to do was cry and wait..... I slowly recovered with only scars and server Asthma. While hospitalized i have several attacks. I can not remember much of the days in between but I can remember having family there with gifts all the time. I was able to eat ice cream and that was about it. I am very lucky to have my life today, and i am thankful for it! When i first recovered and went back to school i was laughed at and called a "cheetah". My feelings where often hurt. I would cry all the time because I felt so ugly. As the months past my skin got darker from being in the sun. Once summer time arrived i was no longer scared to show my scars. They are beautiful to me, the are my life tattoos that will never fad, and i am proud to have them! Now that I am in high school all my friends accept me and love my skin. I am still the same person I was before I suffered SJS, and I will always be me.
My heart goes out to all the families that have lost or even seen a loved one suffer from this painful syndrome. God bless you all! I really would like to have a "walk for awareness" in Philadelphia Pa for the SJS survivors and those whom have lost someone to SJS. If anyone has any questions for me you can email me @ kathleensantiago410@gmail.com. |
| Add Email to Story: | Yes |
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