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ID: 100006 Time/Date: 12:46:53 PM PDT/ 06-26-2009
Name: Kathy
Email Address: kemclallen@aol.com
Story: Jan 2nd I started taking Augmentin for a sinus infection. On the 9th I had some vaginal itching (one of the label warnings on the side effect list). I didn't make the connection, and after another day, and another 2 doses (1650 mg per day) I woke up with my eyes crusted over, my lips and neck were extremely swollen and I had a pink rash on the back of my arms, my backside, legs, hands and feet. By the time I got to the Dr. an hour later it became a red angry rash which really hurt. The Dr said it was from the Meds and gave me a prescription for Hydroxyzine and sent me home. It got worse and blistered on hands and feet and peeled. I did not go to the Hospital, because my Dr said that unless I had open sores I didn't need to. A week later I was horribly congested and went to a new Dr. who said most likely I had SJS. He had me take Zyrtec D and another cough med. That night he called to see how I was doing. After a few weeks the peeling dramatically slowed down. I have not experienced any main permanent problems that I am aware of other than my hands and feet persist in feeling raw and sensitive to heat/cold and my eyes are very dry. Currently I have a rash for the past 2 months (it's now 6/09) which I am hoping is not related to SJS but now I am not too sure. It is on my elbows and shins mostly and is horribly itchy.
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ID: 100005 Time/Date: 07:33:36 PM PDT/ 06-25-2009
Name: Tammie
Email Address: tammiewynette@yahoo.com
Story: I am a 38 yr old mother and wife who is a thankful SJS survivor. I contracted a stomach virus from a pt the week of Halloween 2008. I woke up on the Sunday morning with fecal matter everywhere and in a delerious state, I spent the rest of the day vomiting and loose stools. On Monday the 27th Oct, I was so delirious, my husband had to dress me and take me to the doctor. He immediatley put me on phenegren for nausea, and a diarhea med, I was off work until Nov. 2. Then the "nightmare" began. On Monday, Nov 3rd, at the next doctor appt., he informed me I had a UTI , and since I'm allergic to Penicillin, he prescribed septra. By the way, the UTI(urinary trach infection) came from the stomach virus. I took my antibiotic (septra) all week. I felt tired and weak, but figured it was from recovering from the virus. Then, on Wed, Nov12, I started having heavy heat flashes and sweating. I went on to the hospital to work, had an early staff meeting. As the flashes got work, my boss noticed I was breaking out in a rash and heavy sweating and confusion, she immediately began taking my temp. I went from 99.8 to 101.9 within 15 minutes. The next thing I know, I have a 102.8 temp with chicken pox like rash everywhere. She sent me home, at about 4pm. By the morning, I was at the dr's office at 7:30 am, covered head to toe with rash, temp of 106.7, couldn't swallow, hard to breathe, delirious. He took my blood pressure and it was 280/190, I had SJS.
My husband nearly collapsed. I am an avid mover, I go from day to dark doing housework, taking care of our boys, working at hospital, being sick is just not me. We immediately went into "I've got to survive this" mode. I was off work for 3 weeks (my work, by the way, put it as "fmla," since it was life or death), lost the skin off my lips, was on prednisone for six weeks, lost sight and hearing for several weeks on the right side, and had a small stroke. The stroke was suspected for a while, but recently confirmed. My life will never completely be the same, but thank God, I regained 85%of my sight and hearing that I lost and that I am here to be with my family. My doctor and the doctor I work for are overwhelmingly supportive and help me to keep a check on my health, I am so lucky to have them in my life. Being an SJS survivor is something I will have to come to terms with, but I have faith that I will surely regain some resemblance of my former self.

Thanks,
Tammie Howell
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