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SJS Support Group Facilitators

If you would like to volunteer to be a SJS Support Group Facilitator please complete the below application and mail to:

    Stevens Johnson Syndrome Foundation
    PO BOX 350333
    Westminster, CO 80035
    USA

If you have any questions or concerns please contact us at: (303) 635-1241 OR email us at: sjsupport@aol.com

[ Click here ] to download the SJS Support Group Facilitator application.

Important notes for Voluntary Support Group Facilitator:
Not every group does the same thing. Each group may have different results because of the individuals involved. Patients will receive encouragement by meeting others who have overcome SJS challenges like your own. Facilitators would meet with other SJS patients and share your feelings and experiences. Most patients have been told that they will never meet another person that has had Stevens Johnson Syndrome. As a support group facilitator you will be able to provide them comfort from knowing that they are not alone. You may be contacted by persons with a family member presently in the hospital with SJS. They are desperate to meet with someone that can help them understand what is happening. Please provide them with an SJS Fact Sheet.

The Foundation will provide your contact information on our website so interested parties may contact you directly. Facilitators are not to give medical advice. If asked for medical advice please refer the patient back to their healthcare provider.


Below are the current contacts for the SJS Support Group Facilitators in your area (USA).
Alaska
Dawn Bundick
Email: dbundick@gci.net
Arkansas
Debra Moulton
Email: moultondebra@yahoo.com
Colorado
Jean McCawley
Westminster, CO
Phone: (303) 635-1241
Email: sjsupport@aol.com
Connecticut
Grace Adley
Phone: (203) 430-9014
Email: sjsgrace64@aol.com
Georgia
April Robinson
Atlanta, GA
Phone: (404) 968-3502
Email: april_jones1@hotmail.com
Kansas
Nichole Willis
Halsted, KS
Phone: (316) 835-3119
Email: nwillis@youthville.org
Michigan
Marla Daniel
Phone: (248) 562-7985
Email: marlafd@yahoo.com
New Jersey
Regina Adamousky
Edison, NJ
Phone: (908) 227-0128
Email: reg29320@yahoo.com
New York
Gina Brancato
East Northport, NY
Phone: (631) 754-3540
Email: summer1432@hotmail.com
North Carolina
Mary J Quick
Durham, NC
Phone: (919) 384-9471
Email: Kirasims@yahoo.com
Oklahoma
Donna Pittman
Oklahoma City, OK
Phone: (405) 631-8022
Email: tyger4@aol.com
Oregon
Robert McMillen
Beaverton, OR
Phone: (503) 356-8511
Email: Bob@alltech1.com
Pennsylvania
Christine Ballentine
Philadelphia, PA
Phone: (215) 331-1055
Email: ballentine@blankrome.com

John Hornberger
Central Pennsylvania's Susquehanna Valley
Phone: (570) 648-3208.
Email: jrhorn@ptd.net
South Carolina
Pam Shields
Boiling Springs, SC
Phone: (864) 578-3142
Email: shieldsp@charter.net
Tennessee
Marian Guerra
Chattanooga, TN
Phone: (423) 413-2493 - Between 10am and 3pm
Email: mctg6854@yahoo.com
Texas
Mary (Katie) Niemeyer
Austin, TX
Phone: (512) 825-3930
Email: Jakaeab@mindspring.com
Virginia
Tellis (Ted) LaMar Jr
Salem,Va
Phone: (540) 293-4439
Email: lamar1972@aol.com

Deborah Bareika
Suffolk, VA
Phone: (757) 745-0135
Email: dbareika@yahoo.com

Below are the current contacts for the SJS Support Group Facilitators in your area (Europe).
France
Edgard Devaux
France
Phone: 08 11 03 46 48 , 06 87 57 59 99
Email: edgard_devaux@yahoo.fr
Website: [ Click here ]
Holland
Pieter Hoeberichts
Zoetermeer, Holland
Phone: 31 79 3613418, Mobile: 31 6 18554541
Email: plhb@casema.nl
Website: [ Click here ]
Italy
Zora
Phone: 349 505 72 32
Skype name: tatipapounette
Email: zkacemi@yahoo.it
Support Group: [ Click here ]
Scotland
Carol Kerr
Phone: 01292263699
Email: carol.kerrl@hscali.co.uk
United Kingdom
Susie Orme
S Yorks, UK
Phone: 07980 740472
Email: susie.orme1@btopenworld.com
 
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Information for Donors: The Stevens Johnson Syndrome Foundation is a 501 (C) (3) tax-exempt corporation. All donations to the SJS Foundation are tax-deductible. [ Click here ] for Tax information.
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