If you would like to volunteer to be a SJS Support Group Facilitator please complete the below application and mail to:
Stevens Johnson Syndrome Foundation
PO BOX 350333 Westminster, CO 80035
USA
If you have any questions or concerns please contact us at: (303) 635-1241 OR email us at: sjsupport@aol.com
[ Click here ] to download the SJS Support Group Facilitator application.
Important notes for Voluntary Support Group Facilitator:
Not every group does the same thing. Each group may have different results
because of the individuals involved. Patients will receive encouragement by
meeting others who have overcome SJS challenges like your own. Facilitators would meet with other SJS patients and share your feelings and experiences. Most patients have
been told that they will never meet another person that has had Stevens Johnson Syndrome. As a support group facilitator you will be able to provide them comfort from knowing that they are not alone. You may be contacted by persons with a family member presently in the hospital with SJS. They are desperate to meet with someone that can help them understand what is happening. Please provide them with an SJS Fact Sheet.
The Foundation will provide your contact information on our website so interested parties may contact you directly. Facilitators are not to give medical advice. If asked for medical advice please refer the patient back to their healthcare provider.
Below are the current contacts for the SJS Support Group Facilitators in your area (USA).
Jamie Barrara
Southern California, LA Area
Phone: (951) 443-3252 or (951) 956-5077
Phone calls in Friday and Saturday 6pm to 9pm
Email: perrisafterdark@hotmail.com
Manute Bol's Death Sheds Light on Rare Skin Condition, Says Tampa Dermatologist [click here 1], [click here 2]
Information for Donors: The Stevens Johnson Syndrome Foundation is a 501 (C) (3) tax-exempt corporation. All donations to the SJS Foundation are tax-deductible. [ Click here ] for Tax information.
