• Medical ID Alert Bracelets and Necklaces. American Medical ID. [click here]


• Leona Dorsey suffered from TEN in February 2005. She has written a book about Poetry and her experience and strength through her faith in God that helped her get through TEN. [click here]


• The Dry Eye Remedy: The Complete Guide to Restoring the Health of Your Eyes (Paperback)


• STEVENS JOHNSON SYNDROME: A BOOKLET FOR CHILDREN & THEIR FAMILIES
  Available through C & W Bookstore
  Click here: C&W Bookstore-Provincial Health Services Authority


• The Partnership for Prescription Assistance [click here]
  The Partnership for Prescription Assistance offers a single point of access to more than 475 public and private patient assistance programs, including more than 150 programs offered by pharmaceutical companies


• The NATIONAL PATIENT TRAVEL HELPLINE provides information about all forms of charitable, long-distance medical air transportation and provides referrals to all appropriate sources of help available in the national charitable medical air transportation network.
  [ Click here ] for Charitable medical air transportation resources.


• Request an Angel Flight
  Do you or a family member need transportation to medical treatment? ? Are you a medical or social work professional and know someone who needs transportation to medical treatment?
  
  As our mission statement says, Angel Flight West arranges free air transportation on private aircraft in response to health care and other compelling human needs. Our volunteer members are private pilots who use their own aircraft.


• CaringBridge.org provides free webpages to help families keep in touch and share updates on their loved ones condition during their hospitalization.

You have just survived SJS/TEN and now the question what do I do now? Not everyone that has SJS will have side effects but for those that do this section is to help you find the help you may need. SJS can leave you with many side-effects. Such as permanent loss of nail beds, scarred pores, scarring and hyperpigmentation of the skin, visual impairment, dry eye syndrome, asthma, chronic fatigue, Swallow Disorder.

• Many SJS Patients are unable to continue to work due to lingering side-effects. The sooner you contact Social Security and apply for disability the better. It can take many months to be approved. You may also need to contact Social Services to receive Medicaid. Many of these things can be applied for before you leave the hospital. Most hospitals have a patient advocate and social worker on staff.Social Security Administration Office of Disability - Disability Programs

• If you have damage to your eyes you will need to follow up with a cornea specialist and or ophthalmologist. The Scleral Lens can help relieve pain from dry eye syndrome as well as protect your eyes from scratching lashes that can further damage the cornea. Boston Foundation for Sight AND Parkway Scleral Lens & Parkway EyeCare

• If lid entropian is too bad you may require surgery. Oculoplastic surgeons are usually the most experienced to handle this procedure.

• If you are a parent of a child that has suffered SJS your child may be able to receive tutoring from your school. Your child may also be entitled to an IEP (Individual Education Plan). Know Your Rights: Students - Your Individual Education Plan As a parent you have the right to sit in on this plan and approve or change things. Your child may qualify for a low vision teacher, therapies and additional help at school. The National Federation of the Blind. This is a good resource for those who suffer from permanent blindness. National Federation ofthe Blind, The American Foundation for the Blind

• Home Page of the National Library Service for the Blind and Physically Handicapped

• Specialists you may need to see: Pulmonologist, Ophthalmologist, Dermatologist, Internal Medicine, Gastrointestinal Specialist, Cornea Specialist